This brief outlines the work of the ARISE project and is a mini introduction to how we work in Kenya, Bangladesh, Sierra Leone and India as well as providing a snap shot of some of the ways in which we have made a difference. Read the brief if you want to understand the consortium structure […]
In this week’s episode we will be discussing the intersections between research and activism for social change. With our guests Vinodkumar Rao and Joseph Kimani, we will be seeking to understand how lessons from activist approaches can be applied within research and vice versa. We will also explore how power, participation and social justice fits […]
In this week’s episode we are talking to Inviolata Njoroge from LVCT Kenya and Shrutika Murthy from The George Institute for Global Health (TGI), India. They have shared their experiences of using visual methods and storytelling to bridge the power-laden distances between lived realities of waste pickers, child headed households, the elderly and people with […]
Abstract COVID-19 brings uncertainties and new precarities for communities and researchers, altering and amplifying relational vulnerabilities (vulnerabilities which emerge from relationships of unequal power and place those less powerful at risk of abuse and violence). Research approaches have changed too, with increasing use of remote data collection methods. These multiple changes necessitate new or adapted […]
View the article on page 21 of Lead 4 Magazine, here Recently, the world’s attention has been focused on the 26th UN Climate Change Conference of the Parties (COP26) in Glasgow. While much of the discussion at the event focussed on the future including emissions and projections, the conference also highlighted that for many, climate […]
People living in slums face several challenges to access healthcare. Scarce and low-quality public health facilities are common problems in these communities. Costs and prevalence of catastrophic health expenditures (CHE) have also been reported as high in studies conducted in slums in developing countries and those suffering from chronic conditions and the poorest households seem […]
The world population is becoming increasingly urban with an expected growth of over 60% by 2050. Young people account for a large proportion of the population in low and middle-income countries particularly in informal settlements, and face several challenges to their health and well-being, including good housing, basic healthcare services, and education. Yet, little research […]
The aim of this study is to apply theories of intersectionality and political economy to better understand how informal health service provision, utilization and governance is organised within informal urban settlements in Freetown, and how these impact on the health and healthcare access of people living with chronic health conditions. Download poster
Freetown has over 1 million residents, many of whom live in about 68 crowded informal settlements. Residents of these settlements struggle daily to access basic services such as water, sanitation, and health-care services. We found that the government’s COVID-19 response measures (curfews, lockdowns, and travel restrictions) excluded informal residents from contributing to its design, and […]
Much of the current discussion on safeguarding comes from the perspective of the humanitarian sector, and direct service provision and implementation. Additionally, researchers working in global health also experience safeguarding challenges, and research funders and donors require assurance that safeguarding processes and policies are developed and implemented to protect participants and researchers, yet governance in […]
Involving community researchers and the broader community in the development and validation of priorities, study tools, data collection processes, data analysis, interpretation and action planning is important to the quality of the CBPR process. Consistently engaging the community in monitoring the progress of community activities and gaining their reflexive accounts of the actions ensures rigour within the research process.
Capacities (competencies and conditions)
●Awareness of trustworthiness criteria that draw on critical epistemologies
●Ability to assess and develop contextualised code of research ethics including safeguarding
●Capacity to undertake validation exercises with stakeholders and the wider community to ensure the study is relevant, accepted and supported
●Ongoing learning, quality assessment and safeguarding assessment
●Capacity to contextualise research materials that value local ways of knowing and knowledge production
●Knowledge on how to engage in and apply reflexivity, considering positionality with regard to research findings, to strengthen rigour and trustworthiness
●Ability to triangulate different sources of information to determine research priorities, approach and actions
●Rigorous research findings which draw on trustworthiness criteria
●Generalisable research processes that can enhance CBPR techniques
●Community based research that is robust and adds value to communities, policies and practices
●Community members learn research skills, gain access to resources, and find ways to legitimate their knowledge, which have previously been limited by a history of exclusionary research practices
●After the research partnership has undertaken a process of prioritisation, and before conceptualising the research, validate the priorities and incorporate additional context to increase trustworthiness in the process
●Design research analysis and interpretation procedures that involve community researchers and associated stakeholders
●Have an outsider to help increase the rigour and real and perceived validity of the research
●Conduct data interpretation sessions to discuss interpretations, add context to information collected, and facilitate a better understanding of project documentation
●Triangulate data sources and add participant checking
●Undertake co-analysis activities with co-researchers and stakeholders
●Increase the reliability of the study by developing and using a case study protocol and a chain of evidence
●Design survey and interview questions that are culturally aligned enhancing the fit of the research with the implementing context
●Identify relational and situated ethical and safeguarding concepts and approaches that best fit the specific context and the process-oriented nature of CBPR (25)
●Constructive negotiation with gatekeeping bodies such as funders and research ethics committees to increase understanding of appropriate approaches
●Engage co-researchers and community members during the research tool preparation to cover all the essential aspects of the research including safeguarding risks
Utilise quality criteria to evaluate the CBPR process – see Springett, Atkey (26) and Sandoval, Lucero (27
●Documentation on the translation and adaptation of the materials and quality assurance processes through minutes and notes on discussions and engagement within the team and with stakeholders
●Documentation of research validation processes
●Documentation of discussion during triangulation of findings
●Case studies/stories/blogs that show reflexivity processes
●Peer reviewed publications
●Audio or notes from community validation processes
●NVivo or other screenshots showing quality checking processes
●Development and use of a case study protocol and the development of a database and a chain of evidence to improve reliability of the study
*Please note that some statements are adaptations or direct quotes from the papers listed in the reference section