This photo-narrative book was developed with community members from Green Land (Khulna), Bajekazla (Rajshahi) and Shyampur (Dhaka) communities. It tells the stories of how most marginalised people in urban informal settlements of Bangladesh were affected by the COVID-19 pandemic, and how they came together to respond to the challenges. This action was stimulated and facilitated […]
Earlier this month at the Seventh Global Symposium on Health Systems Research in Bogota, Colombia the ARISE consortium hosted a session on power, “You want to deal with power while riding on power”: Visualising the social ecology of power in politics and policy in health systems. In the session participants were asked to engage in […]
As part of the Seventh Global Symposium on Health Systems Research the ARISE consortium hosted an online session, ‘Accountability from below? Learning from participatory research processes on water and sanitation in informal settlements’. Hosted by Vinodkumar Rao, the session included the voices of our co-researchers and partners in our focus countries Bangladesh, Kenya and Sierra […]
Recent calls to decolonise global health have resulted in an overdue but critical reflection of power sharing in partnerships. Many partners have adopted their own agendas to support this goal, yet cross learning and sharing between partners has been limited owing to a lack of knowing ‘what works’ to support equitable partnerships in practice. While […]
In this episode, we hear from two PhD students from the ARISE Consortium. ARISE stands for accountability and responsiveness in informal settlements for equity, and is about promoting social change for improved health and wellbeing with communities and people living and working within urban informal spaces. This episodes guests: Bachera Aktar Assistant Director, The Centre […]
The Seventh Global Symposium on Health Systems Research is ongoing in Bogota Colombia. The theme of this year’s Conference is Health Systems Performance in the Political Agenda: Sharing lessons for current and future global challenges which directs attention at the significant strife the world has faced during the COVID-19 pandemic. On the first day of […]
The Ripple Effect Mapping Tool provides a space for research partners to reflect on their achievements and refocus on their aims while also supporting reflexivity processes on positionality, inclusion and equity. As such, grounds the research within the lived realities of communities. The tool also supports communities and researchers to engage in critical learning. It […]
Despite gender equality policies at the national level in many African countries, there are persistent gender-based disparities, inequalities and exclusions faced by many women, particularly among low-income urban residents. And while urbanisation may offer greater opportunities for women – for example, in employment, access to services and changes in social and household dynamics – this […]
Abstract Waste work in India is an undervalued role relegated to historically marginalised communities. The informal nature of their work coupled with lack of state regulation keeps waste workers trapped in poverty. This study aims to understand how intersecting systems and relations of power impact the agency of waste workers to shape their health and […]
Abstract Children heading households (CHH) in urban informal settlements face specific vulnerabilities shaped by limitations on their opportunities and capabilities within the context of urban inequities, which affect their wellbeing. We implemented photovoice research with CHHs to explore the intersections between their vulnerabilities and the social and environmental context of Nairobi’s informal settlements. We enrolled […]
Involving community researchers and the broader community in the development and validation of priorities, study tools, data collection processes, data analysis, interpretation and action planning is important to the quality of the CBPR process. Consistently engaging the community in monitoring the progress of community activities and gaining their reflexive accounts of the actions ensures rigour within the research process.
Capacities (competencies and conditions)
●Awareness of trustworthiness criteria that draw on critical epistemologies
●Ability to assess and develop contextualised code of research ethics including safeguarding
●Capacity to undertake validation exercises with stakeholders and the wider community to ensure the study is relevant, accepted and supported
●Ongoing learning, quality assessment and safeguarding assessment
●Capacity to contextualise research materials that value local ways of knowing and knowledge production
●Knowledge on how to engage in and apply reflexivity, considering positionality with regard to research findings, to strengthen rigour and trustworthiness
●Ability to triangulate different sources of information to determine research priorities, approach and actions
●Rigorous research findings which draw on trustworthiness criteria
●Generalisable research processes that can enhance CBPR techniques
●Community based research that is robust and adds value to communities, policies and practices
●Community members learn research skills, gain access to resources, and find ways to legitimate their knowledge, which have previously been limited by a history of exclusionary research practices
●After the research partnership has undertaken a process of prioritisation, and before conceptualising the research, validate the priorities and incorporate additional context to increase trustworthiness in the process
●Design research analysis and interpretation procedures that involve community researchers and associated stakeholders
●Have an outsider to help increase the rigour and real and perceived validity of the research
●Conduct data interpretation sessions to discuss interpretations, add context to information collected, and facilitate a better understanding of project documentation
●Triangulate data sources and add participant checking
●Undertake co-analysis activities with co-researchers and stakeholders
●Increase the reliability of the study by developing and using a case study protocol and a chain of evidence
●Design survey and interview questions that are culturally aligned enhancing the fit of the research with the implementing context
●Identify relational and situated ethical and safeguarding concepts and approaches that best fit the specific context and the process-oriented nature of CBPR (25)
●Constructive negotiation with gatekeeping bodies such as funders and research ethics committees to increase understanding of appropriate approaches
●Engage co-researchers and community members during the research tool preparation to cover all the essential aspects of the research including safeguarding risks
Utilise quality criteria to evaluate the CBPR process – see Springett, Atkey (26) and Sandoval, Lucero (27
●Documentation on the translation and adaptation of the materials and quality assurance processes through minutes and notes on discussions and engagement within the team and with stakeholders
●Documentation of research validation processes
●Documentation of discussion during triangulation of findings
●Case studies/stories/blogs that show reflexivity processes
●Peer reviewed publications
●Audio or notes from community validation processes
●NVivo or other screenshots showing quality checking processes
●Development and use of a case study protocol and the development of a database and a chain of evidence to improve reliability of the study
*Please note that some statements are adaptations or direct quotes from the papers listed in the reference section